UVB treatment begins

Daily hospital visit included meeting with dermatologist as part of his ward round.  

The dermatologist:

- increased my daily dose of Neotigason Capsules (acitretin) from 40 to 50

- started me on UVB light treatment, starting today (3 days a week, must be a day gap between visits)

- confirmed it condition was still in the getting worse stage

Feet

Soles of feet starting to peel

Sicknote

Got gp sick note to give me time to get on top of things as I am currently struggling to work, even from home. 

Prescribed steroid for scalp

Started sleeping in separate room as Simon is not getting any sleep with me in the same room. 

Hypnotherapy

Initial hypnotherapy session to help me cope with itching and sleep. Not expecting miracles however I did come out relaxed and had a decent nights sleep, the first in a while.

Biopsy

Biopsy taken and start of daily hospital treatment- application of 50/50 parafin Emoliant. Applied daily at hospital (except Sunday's) and also self applied at night

a rare nights sleep

A relatively good nights sleep. Lots of shuffling but I didn't think I was itchy.  When I woke I thought I hadn't been shedding but when I took off my top my arms had a lot of skin flakes 

A break from the itching

After over a week of constant itence shedding I have noticed this afternoon the shedding has stopped and the itching has generally been relaxed by a burning pain.   

-today was the first day of real sunshine and I did spend 30 mins in the sun to see what would happen, however the change in symptoms have effected all parts of my arms and thighs, not just the forearms which were exposed to the sun. 

Fields of flakes

Arms and legs covered in a field of flaky skin all the time. especially first thing before i put emollients on

update with photos

For the last week the skin has been very itchy and I have not slept much because of this.

Palms are very leathery, 

Getting through emollients quickly

Very tired not sure how much is due to lack of sleep, or tired because of the condition

Skin around eyes very tender

Prescription arrived today for retinoid but chemists will have to order it

Occational sudden flair ups of itching on scalp and then on skin with losts of flaking/dandruff