I got myself a cheap and easy to use microscope for my computer. Since getting it my skin hasn't been too flakey, so here are some scalp & eyebrow shots. Enjoy :-)
Hi, I'm Kev Hickey and I have a rare skin disease called pityriasis rubra pilaris (PRP). This blog is my diary of my experiences with PRP including my treatment. symptoms. side effects and general thoughts on all things related to having PRP.
Tuesday, 29 December 2015
Another update
It's been a while since my last update. Since then I had a week where I was really itch and flakey all over, but that passed before Christmas. I saw my dermatologist on Christmas Eve and he advised me to stop the neotigason but continue with the methotrexate and folic acid. He also said that while it looks like it's breaking up and doesn't look as bad, it will probably be at least another six months before it starts to properly go.
Merry Christmas
Wednesday, 16 December 2015
Update
Feet: Not
bad at all, often a little sweaty/clammy (this is a good thing). Last week my soles were a little dry and
dusty but they seem fine now
Legs: Red but
not hugely dusty although there is always a layer of fine dust on the inside of
my jeans
Chest & stomach.
Red with lots of islands of sparing (clear spots).
Upper
chest, neck & Cheeks: Itchy patches of peeling flakes
Arms. Red with
pealing flakes. Big patches of peeling
flakes across forearms. Also some islands of sparing
Face. Red
with Islands of sparing, particularly on forehead and spots under eyes. Flaky skin on forehead. Constant band of fine dust around eyes. Although my face is generally dry, I sometimes
get a clammy nose. Eyebrows often seem
full of tiny flakes.
Ears.
Ears and around the ears, constantly itchy and flaky.
Scalp.
Constantly full of flakes
Back:
always itchy and flaky (from what I can see), particularly at the top near the shoulders.
Saturday, 5 December 2015
Regeneration
It been a while since I wrote a blog post, not including the photos and map. You haven't missed much. I'm still red and flakey. The cyst was horrible and made me so tired and drained, but after lots of antibiotics and some revolting squeezing sessions, things are a lot better now. A big thank you to Simon for squeezing.
But back to the Prp, I don't think there are any changes. One of the things I read when I first researched Prp was how much it can effect your mental Heath. This year I have been very low, and although I can't blame it all on the Prp, it has been so depressing living with this everyday. I have tried not to use this blog as a way to wallow in self pity, I'm not sure I have always succeeded. This is only a temporary condition for me. I have to keep telling myself this. There are others that have this condition since childhood and for their entire lives, and of course there are so many more that have to suffer so much more.
I'm a Doctor who fan, and a good friend of mine once joked that what I am going through is a regeneration. Maybe it's true because when I do come out the other side of this I don't think I will be the same man I was going into it.
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