In preparation for tomorrow's visit to the hospital I have prepared a timeline of my story so far ( See below). Slightly worried about tomorrow since i found out I am not seeing a specific dermatologist, instead I am going to a psoriasis clinic and will see whoever is there at the time. Will they understand i don't have psoriasis? Will they know about PRP? Anyway here is my update
- February 2015
Initial symptoms; red spots under armpits moving onto chest - March 2015
Light red ‘sunburn’ rash across body with dark red spots
Skin peeling on palms and arms. Skin on face scaley/powery
Scalp itchy and flakey. Silvery patches
Whole body itchy leading to lack of sleep - 31 March 2015
initial dermatologist visit & PRP Diagnosis
Treatment: Hydroxyzine. antihistamine to help sleep - April 2015
First noticed my body has completely stopped sweating
‘Field of flakes’ across arms
Skin peeling on soles of feet
Constant itchiness & lack of sleep unbarable
Treatment: daily hospital applications of emollients, Neotigason, UVB treatment & Hypnotherapy to help sleeping - May 2015
Shedding all over
Difficult maintaining temperature- Feels cold when others are warm
Swollen feet and ankles
Skin very red/bright pinky Skin around eyes very tight, pulling my eyelids down. Eyes very dry
Very tired
Treatment: UVB stopped. Neotigason reduced. Neoral started - June 2015
No Change - July 2015
Some island of sparing on torso, developing into a clear patch
Very scaley face, scalp, arms, legs
Sudden drops in energy levels - August 2015
Daily hospital emollient treatment stops
The clear patch of skin has gone. Red all over again
Splinter hemorrhages on fingernails
Treatment: 6 x 2.5 mg of Methotrexate once a week, 5mg of Folic Acid 6 days a week, 20mg of Neotigason (acitretin) once a day - September 2015
Several islands of sparing start to appear on torso - October 2015
Reduced flakiness - November 2015
More islands of sparing on torso and some on face - December 2015
Feet start to sweat a little bit
More islands of sparing - January 2016
Flakiness reduced, More islands of sparing - February 2016
Redness receded from my feet up to my stomach, skin is normal colour
Islands of sparing across arms - March 2016
Sweating has returned across most of my body
Islands of sparing across torso have spread so the redness now appears as a web
hello, my daughter was also diagnosed with prp, so I am worried. Our doctor said that it is a disease that will not go away for the rest of his life. I don't know if we can handle it. I hope your situation is good. I hope your disease has disappeared. We were diagnosed yesterday. According to you, what should I do, how should I be useful to my daughter.
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