Logistics

One of the hardest things about having this desease is the logistics of treating it while maintaining full time job which requires me to be away from home for 3 days a week.  

First of all there is the appointments:

- daily hospital appointments where nurses apply appointments.  This is not a major problem as I can do this myself on the days I am out of town

- monthly (approximately) visits to the dermatologist as part of his ward round at the hospital

- GP visits every 4-6 weeks, there always seems some reason to need to go.

- I also have an appointment to see an eye specialist

Then there are the medications & treatments.  These currently include: 

- neoral.  imunosupresent

- Acitretin. retinoid

- HYdroxyzine. antihistamine  

- 50/50 paraffin emollient.  big tubs of the stuff to be applied a couple of times a day

- Emolin Spray.  Spray on alternative to the 50/50 gel which i can put on, on my work days.  

- Cetreben.  Emollient for my face

-  SCC ointment. horrable greasy cream to put on my scalp which lifts off the flakes

- Alternative scalp ointment.  not as discusting or powerful, but i can wear it on work days.

- eye drops for day

-eye gel for night

-emollient shower gel

its not just a case of seeing if I am running low on these treatments, i have to take into account time for ordering and getting the prescription from the doctors, taking it to the chemist, the chemist often has to order it in, which takes another working day and making sure this allows me time to get it before my net trip to newcastle.  

Then there are the daily shedding, brushing, vacuuming logistics and shaking out the bedding each morning  

BUT  Its not going to kill me and i will get better, so i'll quit my moaning now and watch a bit of telly.  After all, I still find time to write all these blog posts