My PRP Photos

We are not alone

Thank you to Meagan Watts who is one of the members of the PRP facebook group. She has set up this map of PRPers around the world using a webiste called diseasemaps.org click on the map below to get an updated view

Cyst

There are a couple of things I didn’t mention in yesterday’s post because I didn’t think they were linked to the PRP.  Now I’m not so sure.   First I have a big old painful lump growing on my back.  It’s been there for months but it’s only the last few days that it’s become big and painful. It’s some kind of cyst which looks like it has become infected.  The doc said the cyst could be filled with all kinds of unpleasant things, including skin cells, which is when I thought it could be related to PRP.   Anyway it’s a week of antibiotics for me before going back to the Docs to see if they can do anything with it.   Over the last week I have also been really tired all the time.  Not sure if this is a something to do with the cyst or the PRP or the combined effect making me feel drained and worn down.   

It's not easy taking a selfie of a lump on your back 

Still nothing to report

This blog has definitely become difficult to write over the last few months because there isn’t anything to write about. I am still having flaky/dusty days.  But not that often. My scalp and hair are still constantly covered in little flakes.  My chest and stomach are still red with islands of sparing.  One change I noticed a week or two ago was I had some islands of sparing on my arms as well.  The only other thing I can think of saying is that the weather has turned cold.  For this reason I am avoiding putting much emollient on.  I don’t want to be walking round in a wet t-shirt in this weather.  I am getting through lots of cotton buds clearing the flakes out of my ears several times a day.  I know you are not supposed to put cotton buds in your ears, but It really is necessary.
I was flicking through all the photos on my phone over the last year.  They are full of ‘selfies’ of my face, arms, legs and chest at various stages of redness/flakiness.  One thing I did notice, in all these photos I could only fine two of me smiling since February.  I know its still November, but already im hoping 2016 will have some more smiles.

Glasses

Flakey skin and glasses, not a good combination 

Am I getting any better?

Time to take a step back and ask if I'm getting any better?   Well I'm definitely past the really really bad phase that lasted until late July-ish. That was when I was waking up with a face covered in flakes and my limbs were constantly peeling. Since since then it's difficult to say. I went for a few weeks, going from July into August where I was getting a big patch of clear skin on my stomach. I also had a patch of clear skin on my left calf.  Since then the clear patch in my stomach has gone and the clear patch on my calf has shrunk.  Having said that I now have clear spots (islands of sparring) on my chest and a blotchy face made of clear spots. So am I getting better? I don't know, if I am it's not happening quick enough for my liking. 

Ps. Although I said my limbs are no longer constantly peeling, I do have flakey arm days, the pic below was taken this week 

PPS. And this close up of my tat. Was also from this week 

update

It’s been over a week since my last post.  As usual at the moment there isn’t anything major to report.   My forehead and face seem particularly blotchy (to me, anyway).  I have mentioned stress before on this blog and this week has been the most stressful of my life, and this is likely to continue for the time being.  The reason I mention this is because I have had some flaky days and I think this is probably related to stress, also the stress I’m going through at the moment means I’m not really paying attention to my skin and what’s happening to it.