My pityriasis rubra pilaris blog

Hi, I'm Kev Hickey and I have a rare skin disease called pityriasis rubra pilaris (PRP). This blog is my diary of my experiences with PRP including my treatment. symptoms. side effects and general thoughts on all things related to having PRP.

Thursday, 26 November 2015

We are not alone

Thank you to Meagan Watts who is one of the members of the PRP facebook group. She has set up this map of PRPers around the world using a webiste called diseasemaps.org click on the map below to get an updated view

Posted by zdfbdfbb at 21:24
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Blog Archive

  • ▼  2015 (94)
    • ►  February (3)
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      • update
      • Am I getting any better?
      • Glasses
      • Still nothing to report
      • Cyst
      • We are not alone
      • My PRP Photos
    • ►  December (4)
  • ►  2016 (18)
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Useful links

  • My PRP Photos
  • World Map of PRPers
  • The Pityriasis Chronicles (blog)
  • A window into my world - a prp blog
  • PRP Closed Facebook group
  • PRP Support group
  • my medical adventure
  • Phases of PRP I
  • PITYRIASIS RUBRA PILARIS (presentation)ByDr. Andrew Griffiths (dermatologist)
  • Living with Pityriasis rubra pilaris (Blog)

Pages

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About Me

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