Hi, I'm Kev Hickey and I have a rare skin disease called pityriasis rubra pilaris (PRP). This blog is my diary of my experiences with PRP including my treatment. symptoms. side effects and general thoughts on all things related to having PRP.
Saturday, 10 October 2015
Update list
Skin shedding. Changes from day to day. There is always a cloud of tiny flakes around me. There have been a few days this week of fairly heavy shedding
Scalp. I am constantly putting a nit comb through my hair and dragging out a clump of white dust.
Hands. Today my palms are dry and a little bit peeling.
Eyes. I don't seem to get the eye worms any more, which is good. The skin around my eyes is always dry and a bit flakey. Also my eye brows are usually full of flakes. It seems particularly uncomfortable when a flake of skin pulls away from below my eye brows.
Itchiness. Again this varies although not directly connected to shedding. I had one night this week where I was itchy as hell but not shedding
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