Well life is still a
bit messed up. A month after moving from Blackpool to Newcastle and
so far living on my own isn’t as scary as I thought it would be. My
life seems to be becoming more and more of a crap soap opera. But
anyway this blog is about my skin so heres the update. Legs still
looking good, face and scalp still flaky. Thats it.
Hi, I'm Kev Hickey and I have a rare skin disease called pityriasis rubra pilaris (PRP). This blog is my diary of my experiences with PRP including my treatment. symptoms. side effects and general thoughts on all things related to having PRP.
Saturday, 27 February 2016
Saturday, 20 February 2016
Update- good and bad
Legs – looking really good. With everything going on I hadn’t really noticed until now but my legs look pretty much back to normal. They are back to their pastey white colour. Having said that they still don’t sweat, but a hell of a lot better than they were.
Stomach/chest – Still red which white islands of sparing. Getting more of these islands, which is good.
Arms – Like the stomach, reddish with islands of sparing. Also there are various geometic lines all over my arms.
Stomach/chest – Still red which white islands of sparing. Getting more of these islands, which is good.
Arms – Like the stomach, reddish with islands of sparing. Also there are various geometic lines all over my arms.
Wednesday, 10 February 2016
Year one
I am not sure what day I first noticed the itchy flakey scalp. I first went to the doctor on 16th Feb 2015, so i think my symptoms must have started around the 10th Feb. So that makes this the one year anniversary, more or less.
It's not been the best year of my life. Having said that I will count my blessings. I have never been in a lot of pain with the Prp, the skin on my feet never became so bad I couldn't walk and in general things are improving.
Rather than reflect on the shittyness of the last year, let's have a general update. My scalp has been very dry and flakey, and over the last couple of days I've noticed my face become a little more flakey, but other than that, no real change.
I joined a gym recently and yesterday I did my first spin class in over five years. It was knackering but, because of the Prp, I didn't sweat, which seemed particularly odd.
Sunday, 31 January 2016
nothing will keep us together
A year ago my other half was planning a holiday of a lifetime to Thailand for my 40th birthday. The holiday never happened because of PRP. This week I moved out and our relationship of just under ten years, came to an end. The PRP wasn't the cause of the problems, but it made it a lot harder to try and fix things. So now I'm fat,forty and flakey...and living on my own for the first time in my life. Actually I'm not that flakey, the skin has definitely improved over recent months, but I'm almost expecting a bit of a relapse due to the stress of it all. I hope I'm wrong.
Sunday, 10 January 2016
My eyes!!!
Yesterday I went to the Optitians to find out about getting laser treatment for my eyes. I admit this is partly for vanity reasons but also because my glasses are constantly covered in a layer of emollient and flakes. Because of my astigmatism, I was given a quote of between £3000-£3500 (ouch). So then the Optitian had a proper look at my eyes and said I couldn't have the treatment now because my eyes were unusually dry. This could be because of the PRP but more than likely it's due to the methotrexate. Also because of the dryness of my eyes I would struggle to go back to contact lenses at the moment. That's not even taking into account I have no idea how I'd put in contact lenses when my hands are constantly covered in grease and flakes. So it stuck with the glasses for the moment.
Saturday, 9 January 2016
Feeling (relatively) good
I know I'm tempting fate by saying this, but this week I really noticed how much my skin has improved . I had a shower on Wednesday morning and didn't have to put cream on straight afterwards, ok I was a little itchy, but I survived.
Tuesday, 29 December 2015
Extreme close up
I got myself a cheap and easy to use microscope for my computer. Since getting it my skin hasn't been too flakey, so here are some scalp & eyebrow shots. Enjoy :-)







Subscribe to:
Posts (Atom)
