When we landed I added some Emoliant as soon as I could. The drive back from the airport was difficult as I was now really tired, my legs were really sore and my night vision was a bit blurry. I got home and got straight to bed where I shuddered uncontrollably for some time. I can't explain what causes the shuddering. I think it's related to the tiredness. I did get to sleep but woke up at 4am scratching. After trying to control it and get back to sleep I gave up and got out of bed at 7. There was lots of skin tone n the bed and a lot more when I rubbed down in the bathroom.
Hi, I'm Kev Hickey and I have a rare skin disease called pityriasis rubra pilaris (PRP). This blog is my diary of my experiences with PRP including my treatment. symptoms. side effects and general thoughts on all things related to having PRP.
Tuesday, 26 May 2015
A bad end to the good holiday
After the great holiday things started to go wrong on the flight back when I was shedding quite a bit and my face was flakey especially around the eyes. I was feeling dehydrated and it was a while before I could get any water on the plane. I couldn't get at the little bit of cetreban I had left which was stored in my bag. Also my legs which had started swelling a few days befor were now really uncomfortable.
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